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The Scientifically Challenged UK Media Strikes Back
Jeannette Burmeister:Reblogging this must-read post by Utting-Wolff Spouts exposing today’s “ethically indefensible” piece by Sarah Knapton, science editor at The Telegraph, about the follow up to the...
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Department of Labor Proposes Lowering Bar for ERISA Disability Claims,...
I am happy to report a rare positive development for disability claimants, one that is important to get behind. As most of you know, the rules under the Employee Retirement Income Security Act...
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Proposed ERISA Disability Regs: Instructions and Sample for Public Comments
[Update 1/15/16: additional guidance for your comments here] Below are instructions on how to submit your comments on the new regulations proposed by the Department of Labor (“DOL”) for long-term...
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Deadline for Comments on Proposed ERISA Disability Regs Fast Approaching:...
We are down to the wire; the deadline for public ERISA (“Employee Retirement Income Security Act”) comments—January 19, 2016—is fast approaching. As of yesterday, the Department of Labor (“DOL”) has...
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Brian Walitt’s Radical Bias: Disorders of Subjective Perception, ME/CFS as...
NIH has tapped Dr. Brian Walitt as the lead clinical investigator for its intramural study “Post-Infectious Myalgic Encephalomyopathy/Chronic Fatigue Syndrome.” (For terminology, please see the end of...
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Has the “Coyne of the Realm” been devalued?
A recent addition to the ME advocacy community, Dr. James Coyne, has been celebrated as a savior of ME patients almost immediately since he joined the conversation just a few months ago by attacking...
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Standing Up to Coyne and Against Unfair Treatment of ME Advocates
By Edward Burmeister I am taking the liberty of posting this entry on Jeannette’s blog. Many of you know that I seldom become involved in ME advocacy. My wife, Jeannette, is typically capable of...
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Keep an Eye on Your Walitt: NIH Study Poses Dramatic Risk to Long-Term...
Many ME/CFS* sufferers are covered by employer-sponsored long-term disability (“LTD”) policies. These policies almost universally limit LTD benefits to 24 months for disability caused—or even just...
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The #CoyneEffect: Is the ME Community Stepping Up or Backing Down?
I have received a number of messages from members of the community inquiring about my absence from ME advocacy and about my health. I deeply appreciate the concerns and thoughtfulness. James David...
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A New Direction
When I published my blog post last week, “The #CoyneEffect: Is the ME Community Stepping Up or Backing Down?” following my hiatus from advocacy, I did not intend for that to be my return to ME...
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